Updated on May 11th 2012 my updates are in bold below
I created this BLOG in hopes that my journey with my mother and her Alzheimer’s can help others. I list my daily posts below. I wanted to explain a little about my mother Alzheimer’s. She has helped me all my life with my journey of cerebral palsy. My website that talks about my cerebral palsy and my climbing adventures is at www.timsashwood.com if you want to check it out. She is 90 years old and has had Alzheimer’s for at least 15 years now. I first noticed her memory problems back in the fall of 1997. She was able to keep driving and handling her check book until the winter of 2003/2004. She could still go on 2 mile hikes with me into 2005 and ½ mile walks thru 2008, now she mostly can only walk a few yards before her hip starts to hurt her. I moved back into her home in 2005 to help her stay in her house although I have kept my own place thru March 2011. One of the things I feel that has helped her go 15 years and still going is I’ve had people (mostly me) around her quit a bit. This helped her stay engaged with people. In 2003 she averaged people with her @90hrs/wk out of 168 hrs in a week, in 2004/2005/2006 @110hrs/wk, 2007 @125hrs/wk, 2008 @135hrs/wk. Then starting in January 2009 she has had someone with her 24/7. I started using care givers in 2005 to help and to give mom other women to talk to and get use to. Right now she can still dress and undress herself but is starting to struggle with it and needs to be told what to do most of the time. In December 2009 she started to refuse to wash herself now one of the care givers I use sponge bathes her 3 times a week. Right now mentally she is like a 3 or 4 year old girl with just a few seconds of memory. She has started to get confused with the getting undressed and dressed part but can still do it herself. She has also sometimes thought the person she sees in the bathroom mirror is someone else this started in 2010. I started using a diaper pad on mom’s bed in July 2011. In the fall of 2011 we increased the dosage on mom’s Galantamine. In March of 2012 I stopped giving her the supplements it has started to get harder to get her to take the pills. So I started just giving her a one a day vitamin instead. Then in May 2012 we have started to crush mom’s pills and put them in applesauce about 3 or 4 days a week. She loves applesauce. She can still walk on her own with no help. Here is a list of the drugs she takes for her Alzheimer’s.
•Razadyne started in 2000 then in 2011 changed to generic Galantamine
•Namenda started March 2005
Wednesday July 31st 2013
Mom did have a small bladder accident last night with
Adrienne around 3am. Adrienne said mom
was easy going last night which she mostly is with Adrienne. Adrienne said mom went to bed around midnight
the past couple of nights. Mom was
eating breakfast when I left this morning.
I went in a little later this morning to celebrate Andrea’s birthday with
mom this morning. Andrea left note that
her word of the day for mom was benevolent.
Mom was in the bathroom when I got home at 5:30pm and we ate dinner when
she got out. So the last time mom ate
was 6:30pm. We spent the evening
watching TV and laughing like normal. I
can still get mom laughing by just acting silly. We watched the NBC show “Americas Got Talent”
mostly.
Tuesday July 30th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was sleeping when I left for
work. It was raining when I left but it
did stop long enough for me to walk into work thank you god. Andrea left note her word of the day for mom
was bonny. Mom was in the bathroom when
I got home at 5:30pm and we ate when she got out so the last time mom ate was
7pm. We watched TV and laughed this
evening. We watched the NBC show
“Americas Got Talent” and Joel Osteen on Daystar.
Monday July 29th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was sleeping when I left for
work. This was the start of my 4th
week of work. Andrea left note that her
word of the day for mom was bleary eyed.
Mom was sitting at the dining table when I got home so we ate dinner when
I got home so the last time mom ate was 6:30pm.
We spent the evening watching TV and laughing. We watched the NBC shows “American Ninja
Warrior”, “Get out Alive” mostly.
Sunday July 28th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was in the bathroom when I
left for church and Patti was here. The
worship part was very good today and then met with friends after the service
like normal for brunch. It was a partly
sunny day with temps in the 70’s another day we could leave the houses windows
open with a nice breeze blowing through made it very nice inside the house and
outside great temps. Mom was eating
lunch when I got home and Patti said mom was sweet and quiet. After lunch and a bathroom break we took our
Sunday drive. We drove along the river
road partway to Grafton IL then we went to both Sioux Passage and Sunset parks
before getting home. Mom was awake on
the drive and looking around but she was quiet.
Then after a bathroom break we ate dinner when we got home. So the last time mom ate was 6:30pm. We spent the evening watching TV and laughing
with mom not napping much.
Saturday July 27th 2013
Mom did have a bladder accident this morning around
10:30am. She went to the bathroom before
breakfast when we got up at 8:30am then after she finished most of her
breakfast she went back in to the bathroom came out 20 minutes later 5 minutes
after she got out the second time she had a bowel accident sitting at the
dining room table. I had to change her
and put into a house coat. It was a
partly sunny day with temps in the 70’s. It was nice leaving the house open all
day with the temp so nice. After
breakfast and bathroom trips we went for our Saturday drive. We drove along the river road to Grafton
IL. We saw about the same number of
people on the hike/bike trail as normal.
There was less boats on the river than normal. We both were quieter than normal on the drive
with mom napping some but then I too was tired so quieter than my normal. We ran into a lot of traffic in West Alton on
the way back it was like a parking lot I thank god mom didn’t have another
bladder/bowel accident. Mom went to the
bathroom when we got home then we had lunch.
Then we both napped until dinner time so the last time mom ate was close
to 7pm. We spent the evening watching
comedy shows and programs on the Daystar channel.
Friday July 26th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was sleeping when I left for
work. Andrea left note that her word of
the day for mom was biddable. Mom was in
the bathroom when I got home and we ate dinner when she got out. So the last time mom ate was 6:30pm and went
to bed at 1:30am. We spent the evening
watching TV and laughing with both of use napping some.
Thursday July 25th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was sleeping when I left for
work. Since Adrienne didn’t come over
last night Andrea got here at 6am.
Andrea left note that her word of the day for mom was buoyant. Mom was watching TV when I got home at 5:30pm
and we ate dinner when I got home so the last time mom ate was 6:30pm. We watched TV and laughed this evening. We mostly watched comedy shows. We did talk to my brother Larry over SKYPE
for about 30 minutes. Adrienne got here
tonight by 10pm.
Wednesday July 24th 2013
Mom did have a bladder accident this afternoon. Mom was
sleeping when I left for work. I left
before Andrea got here Adrienne was still here.
Andrea did leave note that her word of the day for mom was betwixt and
between. Patti said mom was fine and mom
was sitting at dining room table and we ate when I got home at 5:30pm and the
last time mom ate was 6:30pm. We spent
the evening watching TV and laughing with mom awake most of the evening. We watched the NBC show “Americas Got Talent”
mostly. Adrienne called in sick tonight
so it will be me getting mom up tonight.
Tuesday July 23rd 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was sleeping when I left for
work. I left before Andrea got here
Adrienne was still here. Andrea left
note that her word of the day for mom was blithe. Patti said mom was pleasant,
sleepy and quiet. I put mom in the
bathroom when I got home at 5:30pm and we ate after that. So the last time mom ate was 6:30pm. We spent the evening watching TV and laughing
with mom napping a little but not much.
Adrienne got here by 10pm and said mom went to bed last night at 11:30pm
and said mom was fine no problems.
Monday July 22nd 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was sleeping when I left for
work. It was a cloudy rainy day. Andrea left note that her word of the day was
bewildered and Patti said mom was fine. Mom
was watching TV when I got home so we ate dinner then. The last time mom ate was 6:30pm. We spent the evening watching TV and laughing
with mom napping some. Adrienne got here
by 10pm and changed mom and put her to bed.
Adrienne put mom to bed last night at 12:45am.
Sunday July 21st 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was still sleeping when Patti
got here and I left for church. It was a
cloudy day with temps in the 80’s. I had
lunch after the service with friend Dan like normal then came home. Mom was sitting down to eat her lunch when I
got home. Patti said mom was fine and a
little quiet. After mom ate lunch and went to the bathroom we took a
drive. We drove along the river road to
Grafton IL. We saw less boats on the
river and today I notice the river was down enough that I saw some
sandbars. There were also less people on
the hike/bike trail. Mom was awake most
of the drive and looking around but was quitter than normal on the drive. It started to rain when we almost got home so
we did not add Sioux Passage Park to the drive.
Then after a bathroom trip we ate dinner when we got back. So the last time mom ate was 6:30pm. We spent the evening watching TV and laughing
like normal. We watched the NBC show
“Americas Got Talent” and some cop shows.
Adrienne got here a little before 11pm and will put mom to bed tonight
and change mom into mom’s nightgown.
Saturday July 20th 2013
Mom did not have any bladder or bowel accidents overnight or
today. We got up for the day at 9am went
to the bathroom then had breakfast. Then
we had another bathroom trip before taking a drive. It was a partly sunny day with temps in the
90’s. We drove along the river road to
Grafton IL. We saw several people on the
hike/bike trail and tons of motorcycles.
We saw several boats on the river mostly near Alton and Grafton. We even saw some sailboats I do miss sailing
some. Overall mom talked about her
normal amount but she did sleep some as well.
After the drive mom went to the bathroom then we had lunch. After lunch the bathroom and naps for both of
us until dinner time. So the last time
mom ate was 6:30pm and went to bed at 1:30am.
We spent the evening watching TV and laughing with mom napping
some. A note it is getting harder for
mom to get into the car but she can still manage.
Friday July 19th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was sleeping when I left for
work this morning. This was the end of
my second week. Adrienne and Andrea were
changing shifts when I left this morning.
Andrea left note that her word of the day for mom was benign. Mom was in the bathroom when I got home by
5:30pm. We ate when she got out of the
bathroom so the last time she ate was 6:30pm.
We spent the evening watching TV and laughing. We both slept for a while after dinner then
mom was awake most of the evening. We
mostly watched comedy shows. Mom was
easy to change tonight into her house coat. Mom and I went to bed around 2am.
Thursday July 18th 2013
Mom did have a bladder accident this afternoon just before I
got home. Mom was sleeping when I left
for work. I left while Adrienne was
still here and before Andrea got here.
Andrea left note that her word of the day for mom was beautiful. Mom was in the bathroom when I got home by
5:30pm. It is almost the end of my
second full week and still feeling pretty good.
We ate dinner when mom got out of the bathroom so the last time she ate
was 6:30pm. We spent the evening
watching TV and laughing like normal with mom napping a lot. With her napping though it does give me some
time to write this and read the bible. Adrienne
said mom went to bed last night at 12:30am.
Wednesday July 17th 2013
Mom did have a bladder accident this afternoon just before I
got home. Mom was sleeping when I left
for work. Andrea was here when I left
and left a note that her word of the day for mom was bothered. Mom was in the bathroom when I got home at
5:30pm and Patti had put mom into her nightgown after mom’s bladder
accident. We ate when mom got out of the
bathroom so the last time mom ate was 6:30pm.
We spent the evening watching TV and laughing. We mostly watched the NBC show “Americas Got
Talent” then comedy shows. Adrienne got
here by 10pm and I went in to do my prayers shortly after 10pm. Adrienne said mom went to the bathroom
shortly after midnight Tuesday night.
Tuesday July 16th 2013
Mom did have a bladder accident this afternoon just before I
got home. Mom was sleeping when I left early
today for work. I even left 30 minutes
before Andrea got here and it was Adrienne here. Andrea left a note saying her word of the day
was beautiful but Patti had trouble getting mom to the bathroom. We ate dinner shortly after I got home so the
last time mom ate was 6:30pm. We spent
the evening watching TV and laughing with mom napping some. We mostly watched the baseball All Star game
and Joel Osteen on the Daystar channel. Adrienne
said she put mom to bed at 15 minutes past midnight Monday night.
Monday July 15th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was sleeping when I left for
work this morning. This was my first day
after my first week. Andrea left note
that her word of the day for mom was blah and Patti said hers was quiet but
nice. Mom was in the bathroom when I got
home by 5:30pm. We ate dinner when mom
got out and the last time she ate was 6:30pm.
We spent the evening watching TV and laughing. We watched the NBC show “American Ninja” and
“Get out Alive” mostly. Adrienne said
mom went to bed last night around 1am.
Sunday July 14th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was sleeping when I left for
church this morning. Patti got mom up,
fed her breakfast and pills in applesauce.
It was a great worship part of the service today. I met up with friends for bunch like
normal. Mom was in the bathroom when I
got home and when she got out I fed her lunch.
Then we waited for another bathroom break before going for a drive. It was a sunny day with temps in the
80’s. We drove along the river road to
Grafton IL. We did not see very many
boats until we got closer to Grafton. We
did see a few people out on the hike/bike trail but not as many as
yesterday. We both were tired and didn’t
do a lot of talking but mom was alert and enjoying the drive. We drove in the car it is getting harder for
her to get up into my van. We had dinner
when we got home and another bathroom trip.
So the last time mom ate was 7pm and we spent the rest of the evening
watching TV and laughing.
Saturday July 13th 2013
Mom did have 2 bladder accidents this morning. We got up for the day at 10:30am and after
mom went to the bathroom we ate brunch and mom took her pills. After brunch and a bathroom trip we took a
drive. It was a sunny day with temps in
the mid 80’s. We drove along the river
road to Grafton IL. We saw several boats
even several sailboats. We did not see a
lot of people on the hike/bike trail. We
talked about our normal amount even though mom did nap a little. Mom is more talkative on the river road part
of the drive. Mom went to the bathroom
when we got back then shortly after she got out we had dinner so the last time
mom ate was 6pm. We spent the evening
mostly watching the St Louis Cardinals baseball game on TV. Mom did nap some this evening as normal. We also watched some comedy shows and
programs on the Daystar channel. Mom
went to bed tonight after 1:30am.
Friday July 12th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mon was sleeping when I left this
morning. Andrea had got here about 5
minutes before I left and Adrienne was getting ready to leave. This was my last day of my first week back at
work. Adrienne said mom was good
overnight and Andrea left note that her word of the day for mom was
belchy. When I got home Patti said mom
was quiet this afternoon. I was home by
5pm tonight and mom was in the bathroom when I got home. I stopped by the grocery store before getting
home. The last time mom ate was 6pm and
after a bathroom stop we took a drive this evening. It was a sunny evening and we drove to both
Sioux Passage and Sunset Parks. We spent
the rest of the evening watching TV and laughing. Mom did walk outside tonight after the
bathroom and was standing by the car the first time she has done that. Mom went to bed at 11pm tonight.
Thursday July 11th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mon was sleeping when I left this
morning. Andrea had got here about 5
minutes before I left and Adrienne was getting ready to leave. This was my fourth day of my first week back
at work. Andrea left note that her word
of the day for mom was breezy. Mom was
sitting at the dining room table when I got home by 5:30pm so the last time mom
ate was 6pm. We spent the evening
watching TV and laughing when I acted silly.
Mom was awake most of the evening.
Adrienne said mom went to bed at
midnight last night and she got here tonight a little before 10pm. I went to bed a little after 10pm.
Wednesday July 10th 2013
Mom did not have any bladder or bowel accidents overnight or
today. I left this morning before
Andrea got here Adrienne was still here with mom in the bathroom. I left before 7am for my third day of
work. It was raining when I left but
stopped for a little while when I got to work.
Andrea left a note that her word of the day for mom was beatific. Patti said mom was quiet. Mom was in the bathroom when I got home by
5:30pm. We ate dinner when mom got out
of the bathroom so the last time she ate was 6:30pm. We spent the evening watching TV and laughing
with mom awake most of the time. We
watched the show “Americas Got Talent”, programing on the Daystar channel and
comedy shows. Adrienne got here a little
before 10pm and told me mom went to bed last night a little after
midnight. I went to bed a little after
10pm mom was still up tonight and Adrienne will change mom and put her to
bed.
Tuesday July 9th 2013
Mom did not have any bladder or bowel accidents overnight or
today. This was my second day of work
and it went well. Mom was still sleeping
in bed when I left for work a little after 7am.
Adrienne left just before me and Andrea was here when I left. Andrea said her word of the day for mom was
bewitching and Patti said hers was quiet.
Patti was here when I got home at 5:30pm. Mom was coming out of the bathroom and
getting ready to sit down for dinner when I got home. So the last time mom ate was 6:30pm. We spent the evening watching TV and laughing
with mom napping some. We watched the
show “So You Think You Can Dance” mom was attentive and liking the
dancing. We also watched Joel Osteen on
the Daystar channel. I went to bed
shortly after 10pm after Adrienne got here.
Monday July 8th 2013
Mom did not have any bladder or bowel accidents overnight or
today. This was my first day back in
the work world back in the IT field for a few months at least. Mom was in bed when I left for work this
morning. Andrea said her word of the day
for mom was bubbly and Patti said mom was fine mostly but did fuss some on
getting up to go to the bathroom. Mom
ate dinner with Patti tonight since I went in a little later this morning so
left later and didn’t get home until about 6:30pm. We spent the evening
watching TV and laughing with mom napping some.
Adrienne got here around 10pm then I went to bed shortly after she got
here. Adrienne said mom went to bed at
midnight on Sunday night.
Sunday July 7th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was in the bathroom when I
left for church this morning. Patti got
mom up fed and mom was just starting lunch when I got home from church. The music was great as normal and I met up
with friends afterward for brunch. It
was a party sunny warm day. After mom
ate lunch and went to the bathroom we took a drive. We drove along the river road to Grafton IL
then Sioux Passage Park on the way back.
We saw about the same number of boats but less people on the hike/bike
trail compared to yesterday. We also saw
more motorcycles today than yesterday. We
mostly talked about the boats and houses and talked about our normal
amount. After a bathroom stop when we
got back we ate dinner so the last time mom ate was 5:30pm. We spent the evening watching TV and laughing
with mom napping some. We watched the
NBC show “Americas Got Talent” and ABC show “Americas Funniest Videos” mostly. I went to bed at 11pm when Adrienne got here
so I could rest for my first day back at work in a while.
Saturday July 6th 2013
Mom did not have any bladder or bowel accidents overnight or
today. We got up for the day around
10:30am with mom going to the bathroom before breakfast. After breakfast and another bathroom trip we
took a drive. Mom is now getting weaker
in her muscles. It was tougher than ever
before for mom to get into the van but she still can. It was a partly sunny day with temps in the
90’s. We drove along the river road to
Grafton IL then to Sioux Passage Park on the way back. We saw several people out on the hike/bike
trail. There were a lot of boats on the
river as well. We even saw a few
sailboats. Mom talked about her normal
amount even though she slept a little on our drive. We mostly talked about the boats,
motorcycles, people walking and flowers.
Mom now can mostly only see the boats when they are moving unless they
are very close. We had a snack when we
got back then mom napped as we watched TV until dinner. The last time mom ate was 6:30pm and went to
bed at 1am. We spent the evening
watching TV and laughing with mom napping about half the time.
Friday July 5th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was dressed and eating
breakfast when I left to do some reading before meeting up with a friend and go
out to lunch. After lunch I did some
reading picked up my van then ran some errands before getting home by 5pm. Andrea said her word of the day for mom was
barmy Patti said hers was calm. Mom was
in the bathroom when I got home and we ate dinner when she got out. So the last time mom ate was 6pm and went to
bed at 11pm. We spent the evening
watching TV and laughing with mom napping some.
Like normal mom was easy to change and I put her in the house coat so
hopefully I will not need to change her again until Sunday night.
Thursday July 4th 2013
Mom did not have any bladder or bowel accidents overnight or
today. Mom was dressed and eating
breakfast when I left to do some playing and run some errands. Mom was napping in the TV room when I got
home by 3pm. It was a sunny day with
temps in the 80’s. Andrea said her word
of the day for mom was backward and Patti said hers was quiet. I let mom nap a little then go to the
bathroom before we went for a drive. We
drove along the river road partway to Grafton IL. We saw several people on the hike/bike trail
and several boats were out on the river.
Mom was fairly quiet on the drive but was alert and watching the boats
and the scenery. She did talk whenever I
said something to her and she was enjoying the drive. Mom then went to bathroom when we got back
before dinner so we ate a late dinner mom didn’t finish until 7pm. We spent the evening watching TV and mom saw
the last of the Florissant fireworks.
Adrienne got here early and watched the fireworks. Adrienne put mom to bed last night at
11:45pm. I stayed up later tonight and
didn’t go do my prayers and then go to bed until 11pm.
Wednesday July 3rd 2013
Mom did have a small bladder accident early this morning
just before Andrea got here. Mom was
eating breakfast when I left this morning to take my van to the shop. I ate breakfast and read while I waited to
see what the van might need. I had to
leave it at the shop and I ran some errands before getting home by 5pm. I bought mom a new toilet seat that is
cushiony. It was a sunny day with temps
in the 70’s. Mom was in the bathroom
when I got home. Andrea said her word of
the day for mom was banal and Patti said hers was peaceful. We ate dinner when mom got out of the
bathroom. So the last time mom ate was
6pm. We spent the evening watching
mostly specials on PBS, comedy shows and laughing with mom napping some. Mom was in great spirits tonight and happy. Adrienne got here at 10pm and I went to do my
praying and then bed. So I’m not sure
what time mom went to bed tonight but found out she went to bed last night at
11:30pm.
Tuesday July 2nd 2013
Mom did have a small bladder accident early this morning
just before Andrea got here. Mom was
eating breakfast when I left this morning to get a massage. It was a rainy day with temps in the upper
60’s most of the day. I ate lunch at a
new place today and they had great sandwiches.
I then did some playing before getting home by 2pm. The pastor stopped by today at 2pm for about
a 40 minute visit. Andrea said her word
of the day for mom was bang-up. It was
raining all day so I did not take mom for a drive. Mom spent most of the afternoon napping
before dinner. The last time mom ate was
6:30pm. We spent the evening mostly
watching NBC Americas Got Talent and Joel Osteen with mom napping a lot. Adrienne got here by 10pm so not sure what
time mom went to bed. Mom was easy to
change into her nightgown. I went into
my room to do my prayers and go to bed around 10:30pm.
Monday July 1st 2013
Mom did have a bladder accident this afternoon as Patti was
taking her to the bathroom. Mom was just
starting breakfast when I left this morning.
I got up early to meet up for a meeting.
I then ran some errands and a little playing before getting back at
4:30pm. It was a partly sunny day with
temps in the 80’s. Andrea said her word
of the day for mom was brave and Patti said hers was quiet. Mom was in the bathroom when I got home and
we had dinner when she got out. So the
last time mom ate was 5:30pm. We did not
take any drives today. We spent the
evening watching TV and laughing. We
watched America Ninja on the NBC channel and some comedy shows as well. I went to get ready for bed a little after
10pm so I can start training my body to go to bed early and get up early. Adrienne got here a little before 10pm so I
left her with mom. So she will start
putting mom to bed I put mom into her nightgown tonight. Mom was easy to change.